Week 5 of Chemo

Hi again.

This week is from Saturday 18th until Friday 24th June.

During the weekend I felt kinda normal, or at least as normal as I could with no hair and constant meds.

As it was the first week of my 2nd cycle of chemotherapy, I had to go in every day again. It sucks. I went in on Monday feeling really constipated with cramps, and found out the morphine was actually a likely cause of the pain (I have been off it since). Anyway, on Monday I was supposed to have vincristine, a drug, but it causes really heavy constipation, so I didn't have it. Same thing happened on Tuesday.

My mouth has been getting gradually worse, and on Wednesday the doctors thought it more than likely that I was going to have that fungal infection, same as last time. It makes everything except extra-strong mints and spaghetti bolognaise taste like cardboard. Actually, come to thing of it, burgers and bacon still taste good too :) . So on Wednesday they prescribed me EVERY kind of drug to kill the infection properly: fluconazole, gellclair, this special medication mouthwash, nystan, omeprazole, etc. They even took my braces out, which was pretty much the only good thing that's happened to me in months.

And guess what? Out of all those meds, they all taste gross, and none of them work! Argh!

My friend's dad came over to deliver about 10 books from the school library for me, which was really nice, but when I read them, there was a definite theme -almost all of them had at least 1 cancer patient in, and one had people dying of cancer left right and center. Encouraging.

At the hospital school, some of my teachers from normal school have been sending me work. It is so boring, especially as I had already done half of it in school. On week one of last cycle, I wrote this poem for a competition between a few hospitals, and it turned out that I won. Yay. I got a £10 Amazon voucher.

Thursday 23rd was my little brother's birthday. He invited about 5 friends and my Aunt over for go-karting, at this place with a 3 story track, but I was so bored as I had to watch. I'm not allowed to do it with a line in. It reeked of petrol and cheap pizza, and there was no WiFi (!) but it was fun for him. We had pizza back home, and one of his friends gave me a £10 book voucher and some scented shower gels, which was kind (and creepy, considering that particular friend has always appeared to hate me). Though I suppose I used to be friends with his older sister...

My brother got a new phone, same as mine but in black not gold, to replace the one he just lost. I thought that was really unfair, as when mine got stolen I had to wait 4 months with a £10 phone which sucked before getting a more expensive but even worse one for two years, and he got an amazing one after a week. Also, my new one doesn't work properly yet and I've had it almost a month now, but his worked after 3 days :( .

Sorry, I don't mean to sound so jealous and needy. I get it, there isn't much point spending loads on someone who could just die any second. But, to be honest, it does bother me. I try not to let it, but it does. Never mind. Just ignore me.

On Friday, I had a tiny sliver of his cake. That was all I ever got of it. Sorry, sorry. I'll quit with the whining.

My parents got me a new topper for my mattress. Its memory foam, and really comfy, but it still takes hours for me to sleep, and then I wake up loads in the middle of the night, and then I wake up at 4am wanting breakfast. Urgh. It is very comfy, but night time is so BORING.

So, on that cheerful note, see ya,

Mitti x

PS. My parents have actually been amazing to me, pretty much waiting on me hand and foot, making meals for me in the middle of the night, so ignore all that phone talk rubbish. My parents have been amazing.